Alpha 1 is the "genetic variant" of COPD, which is inherited and very rare. The
effects of emphysema have been with him since he was 35 years old. He has been a
staff member and an important part of the NELA team since January 2023.
What motivated you to participate in the NELA study?
Coughing is a part of my life and I want to understand it better.
What was it like participating in the study?
It was a really exciting time, three days of testing with NELA. I am generally a bit
sceptical about studies, as I have had a few unpleasant experiences. But not with
NELA, because it's just a "cough listener".
What do you hope to achieve with NELA?
With NELA, my family doctor/lung specialist will be able to give me the right
therapy earlier and I won’t run the risk of getting a bad exacerbation that will
leave me flat in bed for days.
How did you get involved with NELA as a staff member?
Actually, I came into contact with the NELA team for the first time through my
participation in this study. We had quite intense conversations afterwards about my
experiences with NELA. Today, I am happy to be part of the NELA team and have the
task of providing advice and support to the patients.